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Pologne | 2020 | 91 minutes
Un film de Jaroslaw Szmidt
Pas de résumé français disponible
7-year-old Zuzia, her parents and her sister, they seem to be a normal, happy family. But from the moment she was born, Zuzia has been suffering from one of the most diabolical, rare genetic diseases known to man – EB. After years of constant fight, news of an innovative therapy developed by Prof. Tolar in the USA reaches the parents. This is a big breakthrough, bringing real hope for a rescue and a new life – a life without pain.
The Butterfly’s Dream is a story of a heroic fight for the life and health of the lovely Zuzia Macheta - a 7-year-old girl suffering from an incurable genetic disease - EB. It is a multithreaded story about the power of hope, sacrifice and the love of the whole family, that can help you survive the darkest times. Zuzia’s disease makes her suffer with open wounds all over her body, which cause her continual pain that can be compared to being burned with hot water. Children suffering from EB are often called "butterfly children" because their skin is as sensitive as a butterfly's wing.
Thanks to the solidarity of thousands of people, who believed that they have the power to help, 1,5 mln $ were raised to cover the innovative and risky treatment in USA that might give Zuzia a life without wounds and pain. A long and difficult fight starts, where every day is an emotional rollercoaster and the final award is the life of a girl, whose face is smiling even despite the pain.
Thématique
Distinctions
- 2020 : Minsk International Film Festival Listapad - Minsk (Biélorussie) - Sélection
- 2020 : KFF - Krakowski Festiwal Filmowy - Cracovie (Pologne) - Sélection
- 2020 : International Documentary Film Festival Flahertiana - Perm (Russie) - Compétition internationale